I do not want to dismiss or take away from any other condition or illness but what makes this one so hard is:
-there is no cure: with this comes the desire to constantly want to prove the doctors wrong and find a way for the disease to go away, not show up in my blood work anymore and all symptoms taken away and damage renewed
-it's dabiliatating: life goes from being perfectly independent and capable to in a wheelchair and needing assistance with everything. Taking away so much of what you used to be able to do.
-its on-going: its not like having a baby or getting the flu or having surgery. When these things happen in life usually there is an out pour of people willing to lend a helping hand. When you have a chronic illness that last FOREVER it seems like rather the opposite happens. I'm sure there are several reasons why people shy away. Here's some I can think of: 1. its not a one time job, 2. if they offer to help there is no end in sight, 3.they can't relate and don't understand, 4.they think you can do it on your own because this illness is INVISIBLE. There are many days I have lied in bed and starved until my husband got home from work.
-its invisible: the #1 thing I hear most often when people find out I am sick is " well you look great." Altough I appreciate the comment, I don't look how I feel. I just wish once in a while I could have cuts and bruises, elbows and knees that are red,swollen- as big as bowling balls because then I would look more like I feel. :/
-its on-going: its not like having a baby or getting the flu or having surgery. When these things happen in life usually there is an out pour of people willing to lend a helping hand. When you have a chronic illness that last FOREVER it seems like rather the opposite happens. I'm sure there are several reasons why people shy away. Here's some I can think of: 1. its not a one time job, 2. if they offer to help there is no end in sight, 3.they can't relate and don't understand, 4.they think you can do it on your own because this illness is INVISIBLE. There are many days I have lied in bed and starved until my husband got home from work.
-its invisible: the #1 thing I hear most often when people find out I am sick is " well you look great." Altough I appreciate the comment, I don't look how I feel. I just wish once in a while I could have cuts and bruises, elbows and knees that are red,swollen- as big as bowling balls because then I would look more like I feel. :/
-it changes day to day: I can have a low pain day and do a lot and the very next day I don't have enough strength to brush my teeth.
Through my experience I don't think you can meet stronger people then those who have suffered, endured, fought, prayed and been through battle after battle trying to get through life. I have gained SO much wisdom through this journey. I want to share a little of this wisdom with you now. This is stuff you heard before but please listen and try to live this way so you don't have to go through something extremely hard in life to learn such a simple lesson.
Here it is:
LIFE IS NOT ABOUT :
WHAT YOU DO FOR A LIVING, WHO YOUR FRIENDS ARE, WHAT CAR YOU DRIVE, WHAT BRAND CLOTHES YOU WEAR, WHAT SPORTS YOU PLAY OR DID PLAY, WHO YOUR FAMOUS RELATIVE IS ETC.
LIFE IS ABOUT LOVE- LEARNING TO LOVE AND TO BE LOVED. THAT'S THE WAY WE WERE CREATED.
ALL THOSE THINGS LISTED ABOVE IN A SENSE FALL BACK TO WANTING TO BE LOVED AND TRYING TO FIT IN. HOLDING A STATUS.
ALL I WANT TO DO IS LOVE AND BE LOVED.
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